Monday, 12 May 2008

a scratchy update

Hello all

Long time, no write, eh.

First, I need a disclaimer for what is to follow. This is one of my not-so-good eyesight days so the spelling/typing may well deteriorate toward the end. If so, my apologies.

News.

Well, actually, my news seems to be as much about haven't happeneds as haves.

I haven't got a grandbundle yet -ten days to go. Tegan has dropped but still waiting.

I haven't got a diagnosis for my fat eye yet - waiting on various test results and a biopsy under GA scheduled for the 19th.

Mum hasn't sold her house and moved over here yet.

I haven't got my new specs yet so my eyesight is still iffy for a lot of the time (hence the lousy typing).

Haves-wise....

My meningioma "doesn't have the appearance of being malignant", which is very good news indeed. The neurosurgeon doesn't want to burrow into my head yet, for two reasons. Firstly because my thyroid is not yet under control and an anaesthetic that big is iffy until it is and, secondly, because of the position. It has grown snuggly between my optic nerves and the nerves that control smell, tucked into thwe underside of my frontal lobe. He will watch it with regular MRIs and go in only if it starts to spread rapidly or interfere with nerves.

Progress is happening with my thyroid treatment. I'm on some (shitty) drugs to bring my levels down. The palpitations have gone and the excessive sweating has damped right down. He's pleased with how things are going and hopes to have me under the knife in a few months (assuming the biopsy results come back as benign).

My SIL is safely back from the war zone. Still settling back in but home and safe. The rerst will come.

My eldest daughter greeted her hubby home with a nice case of shingles. It is confined to her bum, which, apparently, is one of the better less painful places to have it. As long as it doesn't interfere with their efforts to conceive (yep, I'm going to be a double nona if all goes as planned), once posting orders come out.

My youngest has fallen in love. Her big sister and BIL seem to thinks he's a nice enough bloke. I won't be meeting him until they come over in September but, if he makes my baby happy, he's OK by me.

And, that's about it. Not much news really, for a two month absence.

Once I get this bloody bung eye fixed up and get my etyesight back I can do a proper update. Until that happens, I'll puddle along doing those things I still can do. I garden a lot, catch up with my kids on Faecbook (my addy is here if you want to add me/leave messages/stickybeak) and knit for the Graygan.

Last of all, many many many thanks for all your messages of support. They are truly appreciated.

Thursday, 13 March 2008

doctors talk in big words (and send big bills)

First I have to thank all of you for all your good wishes, kind words, prayers and thoughts. They seem to be working because I'm still handing in there.

I'm waiting on an appointment with a neurosurgeon at the mo. It seems to be the consensus that I have three separate problems. My thyroid is going berserk, I have something called sarcoidosis in my lacrimal glands (as well as the thyroid eye effects like my right eye trying to pop out of my head) and a growth on the dura behind my eye. I have been told that the surgeon will most probably remove the growth. I'm hoping that is all that needs doing. Fingers crossed.

My main gripe, apart from the whole up-in-the-air lack of diagnosis, is that my eyesight is no longer reliable. Some days, some hours, I'm fine. Other times I have great difficulty seeing anything much for any period. I think I fear losing my sight more than facing a malignancy. I have been assured that these effects are only temporary and will settle down once my treatment for the thyroid and eye problems begins. In the mean while, it is just bloody frustrating.

This too shall pass.

I'm hanging in there, trusting the medical wisdom. It's just bloody hard to fight something when you still don't know what you're facing. But, I shall prevail.

I hope all my mates out there in journalling world are doing fine (I might have a good enough eye day soon to catch up with all your writings). And, thanks again for all your support. It means more than I can say.